 |
Research Opportunities
With Yale Child Study Center Please click on the links to find out more about each research opportunity: Siblings of Boys With TS Study This study is interested in siblings of children with TS and how they cope, their level of empathy compared to other kids their age, their level of responsibility compared to other kids their age, and their feelings and concerns about having a sibling with TS. Participation takes approximately 2-2.5 hours total, and while there is no direct therapeutic benefit for the family they will receive a small token of appreciation upon completion of the study (a $10 Blockbuster gift card or similar item), and any significant results will be shared with participants.
Recruitment criteria: -
A family with no more than four children -
The oldest child is a male between the ages of 13 and 17 with a diagnosis of TS, but no other major problems (child may have OCD and/or ADHD). -
The next oldest child can be male or female, but must be between the ages of 9 and 13 and be no more than 4 years younger than the oldest child. This child should be free of tics, obsession and compulsions, or other major problems (ADHD is ok). Study procedure: -
Once recruited, the parents will be asked to fill out some forms about themselves, and the mother would also be asked to fill out a few forms on each of the two enrolled children. -
The affected boy will complete one form, and the younger sibling will complete a set of forms. All of the forms can be done through the mail or over the phone. -
Lastly, there is a short interview (about 30 min) with the mother about the younger sibling that can be done over the phone. If you are interested in more information, or would like to participate in this study (or wish to learn about other research opportunities in TS or OCD at the Yale Child Study Center), please contact: Nancy Fredine
Yale Child Study Center
230 S. Frontage Rd.
P.O. Box 207900
New Haven, CT 06520
(203) 785-5375
nancy.fredine@yale.edu
RETURN TO TOP Preschoolers At Risk for TS Study This study follows preschool-age children in families where a parent or older sibling is diagnosed with TS. Since TS is a familial disorder, preschoolers with a first-degree family member with TS are at increased risk for developing the disorder themselves. It is a longitudinal study, which means enrolled families are involved for five years, with annual visits that take about 6-8 hours each year, usually spread out over a couple of weeks. The goal of this study is to look for environmental and genetic factors that influence how a child adjusts to the onset of the disorder, when and if it occurs; and if there are any factors that may predict which children will onset and which children will not onset. While there is no direct therapeutic benefit to the families who participate, the children seem to really enjoy participating in the study and receive a small gift upon completion of their testing session. In addition, reports are sent to the family with feedback about how their children did during the testing session, and articles are sent out periodically relaying recent findings from this and other research studies from David Pauls' lab at the Yale Child Study Center. Recruitment criteria: -
Families where at least one member has a diagnosis of TS. -
Children aged 3-5 who are currently not showing any symptoms of TS or OCD (ADHD is ok) -
The experimenters travel all over the US to collect data from families, so travel to Yale is usually not necessary. If you are interested in more information, or would like to participate in this study (or wish to learn about other research opportunities in TS or OCD at the Yale Child Study Center), please contact:
Nancy Fredine
Yale Child Study Center
230 S. Frontage Rd.
P.O. Box 207900
(203) 785-5375
nancy.fredine@yale.edu
RETURN TO TOP | This page was last updated March 3, 2007 | |
|
